Praise God for his continued kindness towards Amos and our family.
Lord, you are my God;
I will exalt you and praise your name,
for in perfect faithfulness
you have done wonderful things,
things planned long ago.
Dear friends and family,
Thank you for continuing to walk with us on this road, upholding us in prayer and friendship. We are so thankful for the ways Amos is known and loved in this space. We praise God for you!
I promised an update so here’s a quick summary:
In May, Amos finished second grade and turned 9 years old. I know! What an amazing thing to say that he’s NINE years old. He celebrated his birthday with eight of his friends from school and Trail Life (both favorite places for him!) and it was extra special to see him surrounded by friends after all the transition of the last 6 years — but the last 2.5 especially. Moving to a new city and encountering a global pandemic has definitely made building community slower than we’d expected!
In June we marked the 6th year since his tumor was discovered, and we continue to be amazed at all God has done for Amos. He is miles away from what life should look like for him — for the better! Amos has come so far since those early days of paralysis after his initial surguries. We are acutely aware, especially in these milestones, of what the Lord has spared Amos and us from.
We also traveled to Duke last month for a round of tests and routine appointments, including a sleep study. This sleep study was meant to check on the sleep apnea concerns that have been present for a long while now. The tonsilectomy that Amos had last summer was aimed at addressing the problem and it did, but only partly. The central (i.e. brain-based) sleep apnea he has dealt with in the past seems to have come back. So at this point the plan is for Amos to begin using a CPap machine at night. Obviously, this isn’t very exciting in many ways, but we do think it could prove very beneficial to Amos. He’s mostly exhibiting hypopnia in his sleep (breath holding) and it wakes him up, disturbing his sleep cycles, and harming the restfulness of his nights. We see the results of that process in his day-to-day energy levels and endurance. We hope that better sleep will produce better stamina! We’re scheduled to get started with this new sleep arrangement in October. Please pray for Amos’s willingness to adjust to sleeping with a CPap as it’s not something most adults (or kids) enjoy.
Otherwise, Amos has had a fantastic summer! He was able to visit family in Iowa and Pennsylvania and our first family trip to the NC coast with dear friends was a delight. Amos and all the kids are growing so much and we love seeing their personalities and interests unfold. Amos loves to read. He’s working through the Swallows and Amazon’s series by Arthur Ransom. He also accomplished a major milestone by learning to swim with confidence this summer. We are grateful for the physical progress he’s making and see many more milestones and challenges up ahead.
Most of all we pray that this difficult road will serve as a signpost in Amos’s life, pointing him to Christ and the rescue he has already received from the greatest enemy of all — sin and death.
Thanks for praying with us and cheering Amos on!
Love in Christ,
Kelli, Will, Amos, Luke, Sam and Phoebe