Dear friends and family,
Just a quick note on this last morning here in Dana Point, California. We have had another very busy week, full of preparation and finalizing logistics. Currently the car is packed up with lots (and lots) of luggage, things that we have accumulated over the last three months we have been here, medical supplies, stuffed animals, books, etc. etc. It has been quite a circus getting all this stuff organized and packed but we did it with lots of help.
Amos had his follow-up MRI to examine the results of his radiation treatments. Now, since the tumor was fully removed, this was mostly a routine action item, but still very important to determine that there was no recurrence of the cancer. Thanks be to God, the MRI looks very good according to Amos’ medical experts. There is still some internal swelling from the surgery, so pray that it recovers well. Secondly, Amos had his “Mickey button” installed. He has had a G-tube in his stomach for two months now, which allows him to have his formula meals directly put into his tummy. The Mickey button replaces that 9-inch G-tube dangling out of his tummy with a “button”-like valve that is nearly flat against his stomach, and which opens up to have a feeding tube attached to it. This is much easier and we are very glad to have had this done before we left.
One great highlight from this past week was Amos’ long-awaited fishing trip. As much as I hate to say it, I know more about neuro-oncology now than I do fishing. Fortunately, Grandpa and Gigi are old pros and knew just what to do – it was very educational! We headed down to the Dana Point harbor and cast our line. While we didn’t catch anything, we did get a few bites – and found a bright yellow bouncy baseball. All in all, Amos got some sun and definitely had a blast!
As things look now, we will probably head directly to Addenbrooke’s Hospital in Cambridge when we pull into town. Amos needs to meet his new team of doctors and therapists, and the easiest way to do this is for him to be inpatient for a few days. We also need to replace our medial equipment with UK equivalents, and get appointments lined up for his first chemotherapy treatment. Please pray that we all stay patent and gracious with one another as we a very long journey directly into the hospital with two very jetlagged children and a truckload of luggage.
Specifically, please pray:
- For safe travel to and from airports, and on the plane.
- For a germ-free trip across the Atlantic, without any sick children as a result.
- For a manageable flight, that Amos would have no medical problems in-flight, and that both boys would sleep.
- That the logistics of switching medical teams would be worked out smoothly and successfully.
- That the first installment of chemotherapy would be within the schedule laid out by his oncologist here, and that there would be no delays throughout its course.
- That Kelli and I would be able to get our home life back in order to give the children as much structure and regularity as we can.
- That Amos would continue to recover his strength and would heal completely and permanently, with no recurrence of the cancer.
Thank you, dear friends!
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Prov. 3:5-6
Love in Christ,
Will, Kelli, Amos, and Lucas