Weekend Amos Update #45

Hi Friends,

It’s hard to believe that not only is another week upon us but also the month of September. Time is flying by and we continue to be encouraged by the progress Amos is making. The rest of the week was pretty uneventful since our last update, with further progress on all fronts for Amos. Will and I grow in learning how to care for Amos and understand his efforts to communicate. Amos continues to be mostly patient, cooperative, and very brave. He has a favorite oncologist who he goes searching for every time he gets to exercise in his “speed racer” (i.e., his walker). It is such a delight to see him “race” around the halls looking for Jody, knowing that she will make such a fuss when he eventually finds her. On Friday he refused to go back to his room without seeing her … so we continued on the search and eventually found Jody. Amos walked right up to her with the biggest smile and a generous hug. It’s so sweet to see him connecting with his medical team here. They are all wonderful.

Amos’ physical strength is returning quite well and it’s nice to see him sit up in various locations throughout the day unless he is napping (still a rarity). He’s enjoying his different modes of transportation – like his walker, bike, and wagon – that almost always take him downstairs and outside to the play area. His favorite activity outside is baseball and some of the interactive stations. Grandpa scored big with an “easy catch” baseball mitt and ball this weekend – the baseball bug lives on for Amos. He’s an official Angels fan!

The other main item on the table this week was trying to figure out when Amos will discharge from the hospital and when we should look to transition back to Cambridge (and buy plane tickets!!). Our doctors here and in the UK have been in touch and everything seems to be going pretty smoothly in terms of making sure we have all the medical pieces in place for our return. Please do continue to pray that everything will fall perfectly into place as we book tickets and discuss Amos’ medical situation moving forward. Also pray for …

  • For Amos to continue his forward progress on all fronts
  • For radiation to be completely and permanently effective with no side effects (this is the LAST week!)
  • For Amos to ultimately be cancer free forever
  • For the swallowing to return and for Amos’s speaking abilities to improve quickly
  • For our family and doctors here at CHOC as we all make plans for what these next weeks and months will look like for Amos and our family both here in the US and in the UK

Thank you for Praying. We continue to be in need of your prayers and thankful for all the ways in which we feel supported and strengthened by all of you.

For His dominion is an everlasting dominion, and his kingdom is from generation to generation.” Daniel 4:34b

And here are some pictures to finish off the update! We love our boys and are so very thankful for them and the gift that they are to us! (Click to enlarge and scroll through)

Love in Christ,

Kelli, Will, Amos and Luke

One thought on “Weekend Amos Update #45

  1. Praise God for all the blessings in this update, and through this whole tough trial. We are so happy to hear it is the last week of radiation! What a joy it is to see the pictures of you all….such a beautiful family! 😊 Love and prayers, Jeff and Robin Kerber

    Sent from my iPhone



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