Hi Friends, Just a quick update to say that the ENT appointment yesterday was somewhat of a false start. We met with the doctor, who actually put in Amos’ trach last summer, and he said we need to schedule a second appointment to scope Amos and check for any obstruction. So, we just wanted to … More ENT Update

Dear Friends and Family, We are enjoying some delightfully ordinary times of late. Just yesterday we woke up to the sound of Amos happily calling for “Mommy!” through the monitor. Will and I went back and forth over who had to get up and go get him and I was the lucky one who got … More Delightfully Ordinary Days

Dear Friends, Thank you for following along with Amos and our family’s story. We are thankful for you and the ways you encourage, pray for, and support us in countless ways. We wanted to give a quick update on a new development. Amos was able to see Dr. Chantal Boisvert, a pediatric neuro-ophthalmologist today. We … More Seeing More Clearly

Hello Friends and Family, Thank you so much for praying! I’m sorry for not posting an update sooner about the sleep study on Thursday night. We won’t have official results until sometime next week but I think the sleep study went well. I’m not sure if it went well enough, but we shall see. Overall, … More Thank You for Praying

Hello Friends, It’s Saturday again and I can’t believe how much I have to report! It’s been a very busy 10 days or so since our last update and Amos is doing very well. Thank you for praying for his scan last week. The MRI results were good and our meeting with Amos’ neurosurgeon was encouraging. We … More Sweet Progress