November Update

Hello Friends,

It’s Bonfire Night here in England (at least it was when I wrote this) so we’re settling in for a loud evening that will – unsurprisingly – be wet, soggy, and celebratory! I can’t believe that November is upon us already. Autumn is flying by and we are thankful for all the things we’ve been able to do, including apple festivals, visits from family, a trip to the Cotswolds, and a good first few months of home schooling.

In our last update we mentioned Amos’s upcoming endocrine test to see whether he is growth hormone deficient or not. We had met with the CHOC and Addenbrookes endocrine specialists and got a lot of really helpful information to think about as we moved towards exploring whether growth hormone treatment would be the right choice for Amos. This week we heard back on the test results and they clearly indicate that Amos needs supplemental growth hormone treatment. Our first reaction to this news was to be very thankful that the results were so clear. Everyone is in agreement that Amos needs growth hormone therapy – which is not a given when it comes to pediatric endocrine issues! So we are very thankful to have a clear path forward.

For those who might be wondering, growth hormone therapy isn’t just an effort to help Amos grow taller, although that is a needed and definite outcome. Human growth hormone impacts not only height but also muscle strength, bone health, and cardiac health as well as contributing to overall hormone balance. Kids like Amos who have had brain tumors and radiation often find their hypothalamus function lacking and thus need various hormone therapies.

Now that we know the path ahead, please pray for Amos as we begin treatment hopefully in the next 4-6 weeks. The treatment involves a daily injection and a fair bit of blood work to make sure the dosage is correct, etc. There are also a good number of possible side effects that Amos could experience. Please pray for us and for his doctors to be discerning as it’s not always easy to know what’s causing what when hormones enter into the picture. Please pray for peace as well, that we would trust God knowing that Amos needs this treatment no matter what the side effects end up being.

A quick vision update too: we have decided to wait on another eye surgery to correct the vision issues we are seeing. Instead, we’re going to spend the next few months working really hard on vision therapy to see if we can get the muscles in his eyes to do what surgery would otherwise accomplish. Please pray for special diligence for Amos as vision therapy is a hard and often frustrating thing for him and us to work on. We’ve got a great team of doctors supporting Amos and we are thankful for their continued help!

And thank you so much for continuing to pray. We are mindful of how much Amos has overcome and we’re so thankful for the strength that the Lord gives him (and us) to persevere. Please pray for Amos’s ongoing vision, endocrine treatment, overall recovery, and continued protection from a recurrence of cancer.  Please also keep us in prayer as Will travels to the east coast of the US for conferences this month and then 3 days later takes Amos to CA for an MRI checkup. So it will be a busy month! We are thankful for you all.

Love in Christ,

The Ross Family

 

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8 thoughts on “November Update

  1. We will pray for the upcoming hormone treatment. As someone who takes hormones because of thyroid issues, I know hormones can be a tricky deal. Kelli, sorry I haven’t written in awhile. I think of you so often! Will, look for George and me at SBL. It will be good to see you face to face. Will you be at TH breakfast? Give hugs to all the boys. We love y’all 🍂🍎🍁🍎🍂🍎

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  2. We will continue our prayers for all of you. Your days must be busy with 3wonderful bundles of joy and home schooling and all the therapy you get done each day. Thank you so much for taking your precious time to keep us all updated. Our prayers from Newton will continue and we will be anxious to read an update after Wills California’s trip. We trust in God.

    Sent from my iPad

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  3. It is always good to hear your updates to give direction to our prayers. We will be praying for God to give you His strength and wisdom as you continue on this journey. Much love to the Ross family❤️❤️🙏🙏❤️❤️

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  4. We are always so encouraged by your updates and continue to pray for all the doctors treating Amos, for all of you and for your every need and concern expressed. Love you all dearly, Danielle

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  5. Dear Kelli, Will, and that happy-looking trio of fine young men,

    Thanks so much for so faithfully keeping us in touch with your lives, and we thank God for the medical means that he grants us to care for those we love, including Amos. May you know the peace of Christ and a happy reunion when Will & Amos return.

    And when you are next in PA, breakfast will be waiting.

    Much love from us all to you all.

    fred (for Lee & Lydia)

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