End of Summer & September MRI

Dear Friends and Family,

You are probably just as amazed as we are that the summer is quickly coming to a close and autumn is upon us. Kelli and I are dumbfounded how quickly time has flown since the last CA trip with Amos back in July. It has been a great summer here in England, and our only regret is not posting on the blog a bit more than we have!

Finally, an update.

September MRI

First things first: Amos and I (Will) have another MRI trip coming up next Saturday. This is one of our “typical” trips: arriving Saturday night in CA, resting Sunday, then doing the MRI on Monday morning with a phone consultation with our neurosurgeon for results. Back Tuesday.

This time we’re also fitting in an eye appointment as usual, as well as an appointment with an endocrinologist. This is essentially a hormone doctor. Amos is on the very low side of the growth spectrum, still a little short and heavy set for his age bracket, so we are going to begin hormone therapy to help kick-start his growth. This kind of treatment is pretty normal for post-chemo kids, especially those who have had radiation in the brain stem like Amos. The trick is to get into a course of therapy that won’t have negative side effects, so it’s something we plan to manage as closely as we can with regular check-ups. Please pray for a safe trip next week and a clear and stable scan!

Remembering the Worst

We have had a lot of fun here this summer, which has been our first in England even though we moved here just over three years ago now. Kelli and I were out at dinner last night (a rare date night!) reflecting that two years ago yesterday Amos was discharged from CHOC after around 11 weeks and many procedures, therapies, etc. etc. You can read about that day here.

Despite all the history recorded on this blog, and etched into our hearts, it is surprisingly easy to forget. Possibly because it is (unsurprisingly) difficult to deliberately remember painful things. So many emotions and frightening experiences linger in our minds and hearts, like spiderwebs in the back of a dark closet: inactive and unoffensive as long as the door stays shut.

We’ve had the privilege of “opening the door” on our memories and trauma over this summer, however, with some dear friends of ours (who are also, as it happens, trained counsellors). Kelli and I recognised about six months ago that the determined, forward-looking attitude we generally maintain (by God’s grace) and which tends to help us carry on can also become a barrier to healthy reflection on all the hard things we have yet to process. So we sought help, and it’s been wonderful simply to have someone to sit with and purposefully remember out loud, cry, laugh, pray, and cry more.

We have barely scratched the surface of it all. A lot of our “California memories” remain much like the photobook we put together from that time and ordered online: still wrapped in the plastic it arrived in, no one particularly interested in looking at it just yet. But with help we’ve begun what I hope is a pattern of processing. Please pray that Kelli and I would have the spiritual fortitude to be able to deliberately remember the worst things that God has faithfully brought us through.

Summer Fun

Thankfully, part of the reason it is easy to not look back in reflection is because things feel so normal now. We have had a lot of fun this summer, and here are some highlights, told by picture (click to enlarge):

Prayer

  • That Amos’s vision therapy would help his eye control and movement to improve, as we’ve seen him lose ground in this area over the last few weeks.
  • Ability to remember God’s faithfulness in the worst of what we’ve been through.
  • Clear and stable MRI next week.

We praise you, God,  we praise you, for your Name is near; people tell of your wonderful deeds. (Psalm 75:1)

Love in Christ,

Will, Kelli, Amos, Lucas, and Samuel

Advertisements

10 thoughts on “End of Summer & September MRI

  1. Loved, Loved this posting and the pictures of the boys!!! I think of you and the boys so often. Thanks for the pictures of the Lake District: our favorite place in the UK. Also, Edinburgh- our daughter went to uni there and we often visited her. What a great city. So good to see your posting. Yes, prayers continue for you all. love, jackie and ed.

    Dr. Jacqueline J. Glenny Professor of Communication University of Northwestern 3003 Snelling Avenue North Saint Paul, MN 55113 651.631.5257-o 651.482.5993-h ________________________________

    Like

  2. I think I have been on that tiny train. I know I was in Coniston once when I was 14. Also rode in a steam launch on lake Windemere. Such rugged beauty and so glad you had a chance to enjoy it TOGETHER!!

    Pray for Gwen about to give birth in the middle of storm Irma and then Jose!!!

    On Sat, Sep 9, 2017 at 1:11 PM Amos Ross Updates wrote:

    > WilliamARoss posted: “Dear Friends and Family, You are probably just as > amazed as we are that the summer is quickly coming to a close and autumn is > upon us. Kelli and I are dumbfounded how quickly time has flown since the > last CA trip with Amos back in July. It has been a gre” >

    Like

  3. I always read your blogs with such admiration for your faith and positivity. The boys are getting so big and as adorable as ever!
    Praying for your safe travels and for clear MRI results for Amos. I am amazed at God’s grace while following your journey. Much love to you all.

    Like

    1. Couldn’t be more uplifting and encouraging than the beautiful pics, memorable content and genuine hopefulness for a bright and blessed future. We continue to pray for physical, emotional and spiritual healing for all. I will miss you, Will and Amos by about 5 days. Rats! Maybe another trip.

      Liked by 1 person

  4. As always, fascinating to read your adventures; in the lake district, but also commuting to CA. Good to keep in touch and a stimulus to prayers.

    Like

  5. Dear Will, Kelli, Amos, Luke, & Samuel,

    What a summer! And what a year! You are so right–we push the negatives as quickly as possible into the back closet of our hearts, then lock the door and do our best to lose the key. May the Lord give you both grace and strength for good conversations, healing, and the gift of bearing one another’s burdens and knowing that your burdens too are being borne by those around you.

    And may God continue his mercy toward you and us all in Christ.

    With much love from our household to yours.

    fred

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s