What a week! Thank you for praying for us. Will left us on Monday for two conferences in Atlanta and my friend Emily arrived to help me hold down the fort. As we wait for Will to come back this Tuesday, we’ve had our hands full! I feel like we’ve run a marathon each day just managing the boys and keeping everyone fed and clean and happy. Whew! Oh and not to mention the many doctors appointments…
The week has held so many blessings- mainly that Amos was able to enjoy 8 days at home before being admitted yesterday for a fever. This is certainly something to celebrate! This has been the longest stretch at home since September and we have SO enjoyed the chance to recoup together and enjoy the simple things that being at home afford. Amos has gotten so much stronger during these days and we’ve seen a really significant improvement in his overall well-being. It finally feels like we are seeing some results to the changes we’ve made in the last month or so- mainly shifting completely from the processed formula that Amos had been on to an organic whole foods based blended diet that we make at home. It’s been shocking to see what a change it’s made for Amos. His energy levels and immune system have clearly boosted, as seen by the 8 whole days at home verses 0 from the first round of chemo. We are so encouraged to see these changes.
Even now, as Amos is in the hospital for a fever, doctors and nurses are oohing and ahhing over how wonderful he looks. Remarking on how cheerful, engaging, and energized he seems. It is SO encouraging to hear people ask, “Wow, what are you doing? He looks amazing!”. It isn’t too much of a surprise for Amos to be in the hospital right now as his white blood cell count is at its lowest for this round of chemo. He spiked one fever yesterday and he’s been on the upswing ever since we got him to Choc and on an antibiotic. Lord willing, he will be fever-free and come home tomorrow. Even if he doesn’t come home tomorrow, we are thankful for the differences between this round and round #1 of chemo. Amos is clearly battling better and we are so thankful.
He’s been so much more himself this last week – playing, engaging, talking, and coming up with his own ideas. It’s a delight to see him take initiative with play or in explaining something to someone without prompting. I can’t describe the joy of hearing Amos ask to go for a walk, ask questions, or share what he’s thinking these days.
We’ve had some really great days including our first “fun” outing in a long time. My friend, Emily, and I took the boys to Balboa Island for lunch and a walk on Friday. It was lovely to see the ocean and for the boys to enjoy some new scenery too. We’ve been out for many walks in the neighborhood, trips to the park (in the neighborhood also!), and therapy appointments. Our days are unbelievably busy as it’s hard to fit all of Amos’ care and rehab “homework” in along with the rest of life’s tasks. Emily has been a tremendous help.
Please join us in praying that Amos will come home from the hospital tomorrow and that Daddy will make it safely home on Tuesday. We are excited to be together again and hopeful for more good days at home for Amos in the future. Here are some pictures from this week:
Thank you for praying. I’ll leave you with the words to a song I’ve been loving lately. It’s from Sandra McCracken’s Psalms album, which I highly recommend!
We Will Feast in the House of Zion
We will feast in the house of Zion
We will sing with our hearts restored
He has done great things, we will say together
We will feast and weep no more
We will not be burned by the fire
He is the LORD our God
We are not consumed, by the flood
Upheld, protected, gathered up (Chorus)
In the dark of night, before the dawn
My soul, be not afraid
For the promised morning, oh how long?
Oh God of Jacob, be my strength (Chorus)
Every vow we’ve broken and betrayed
You are the Faithful one
And from the garden to the grave
Bind us together, bring shalom. (Chorus)
Love in Christ,
Kelli, Will, Amos and Luke