Wednesday July 29 Amos Update #33: Radiation Day 3

Our hearts are full as we see yet another day of progress for Amos. He is doing so well and frankly, we are amazed and thankful. When we were initially told about radiation and what to expect, the doctors explained that wherever he was in the recovery process when radiation began was likely where he would stay for the whole six weeks. We are delighted to say that at least for these first three days, that has not been the case! Amos’ physical and cognitive abilities continue to improve. Now, we know that this very well may slow down as the radiation continues, but we are so thankful for the ground that Amos is covering right now.

He continues to build muscle strength and coordination- most notably in his head strength and use of his hands. He also continues to progress in his cognitive abilities, which is so exciting for all of us to see. He’s enjoying playing with musical instruments, clapping, high fives, and head nods. The nodding “yes” and “no” is extremely helpful for everyone and he seems so proud of his newest and clearest way of communicating yet! Each day wipes him out completely and for good reason.

We had a visit from one of the oncologists today and she was singing Amos’ praises as she interacted with him and saw how quickly he’s progressing. If many of you saw him you might not think much of his abilities … but if you’d seen him three weeks ago you too would be amazed.

There was a particularly wonderful moment that I (Will) had this morning with Amos before radiation. Each day we try to read from the Bible and pray before the day gets going. Today, we read from The Jesus Storybook Bible about Jesus teaching his disciples to pray. A good friend had sent us this prayer below, found in the French Reformed liturgy, so I decided to pray it for Amos when we were finished. 20150729_153630630_iOSWhen I told him we were about to pray, Amos folded his hands together, just as he always used to do, totally unprompted! What a blessing to see!

“For you, little child, Jesus Christ has come, he has fought, he has suffered.
For you he entered the shadow of Gethsemane and the horror of Calvary.
For you he uttered the cry, ‘It is finished’. For you he rose from the dead and ascended into heaven,
and there he intercedes for you, little child, even though you do not know it. But in this way, 
the gospel becomes true, ‘We love God because he first loved us.'”

Thanks for your faithful prayers! Please pray:

-That radiation would be perfectly effective and that there would be no more cancer, ever.
-For Amos to be brave, patient, and diligent as we ask so much of him each day with radiation and therapy.
-That the posterior fossa syndrome would pass soon.
-For Will and I to have wisdom as we interact with Amos and his care givers.
-For Amos to be encouraged in all of this and that he would know peace amidst all of the struggles, pain, and confusion

By this the love of God was manifested in us, that God has sent His only begotten Son into the world so that we might live through Him. (1 John 4:9)

In Christ,

The Ross Family

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8 thoughts on “Wednesday July 29 Amos Update #33: Radiation Day 3

  1. What a blessing to read the positive updates! We are thankful Amos is doing well, and handling the radiation okay. So sweet to see his little praying hands too! You guys are such an inspiration, and an amazing witness for Christ.
    Love and prayers,
    Jeff and Robin Kerber

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  2. Dear Will, Kelli, Amos, & Lucas,

    Thank you so much for this update with its little story, and for including this wonderful prayer. May these words soon come from Amos’s own lips and heart as he prays for his brother and other children; may your hearts continue to be filled and to overflow with the goodness and grace of God, whatever each day brings. And thus may we all live and rejoice.

    Peace in Christ, and much love from us all,

    fred

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  3. The lord put Amos and your family on my heart this morning when I woke up. Have been praying for all of you and that your wonderful example of praising in the midst of hardship encourages others.

    Love, Laura Chapman (and Ben)

    Sent from my iPhone

    >

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